An exciting holiday to Croatia for two including flights, courtesy of Exodus Travels, is up for grabs in a charity Christmas Raffle. Raffle tickets cost £1 each. All funds go straight to supporting young boys affected by a cruel and devastating disorder.
ALD Life is a patient support group for patients and families affected with Adrenoleukodystrophy (ALD) – a rare genetic disorder that affects mainly young boys aged 4 to 10. At present, there isn't a cure for ALD with young boys becoming rendered into a semi-vegetative state within months, and death usually occurring shortly afterwards.
Adrenoleukodystrophy (ALD) is an inherited neurological disorder that affects young boys' ability to see, hear, speak and walk, and causes paralysis of certain limbs and seizures.
The charity was set-up by a local mother, Sara Hunt, when her son Alex was diagnosed with ALD in 2001. ALD Life provides emotional and financial support and practical information and advice to patients and families throughout the UK. The charity also helps to fund research projects looking into finding a cure for the disorder.
This Christmas, they've organised a raffle to raise funds to support young boys affected by this cruel and devastating disorder.
In August, they are holding a Get Together Family Weekend, which helps patients and families to come together and share their experiences with others. As a rare genetic disorder, patients and families are geographically-spread, and as such many never come in contact with others going through the same experiences.
Sara said: "All funds from our Christmas raffle will help ensure our Get Together Family Weekend can go ahead. We hope we can provide patients and their families with an opportunity to come together to share experiences and get away from the daily rigors of life with the disorder."
Prize Details:
1st Prize: an exciting holiday to Croatia for two, including flights, courtesy of Exodus Travels. For more information visit http://www.exodus.co.uk/holidays/add/overview"
2nd Prize: £100
3rd Prize: £50
Raffle tickets cost £1 each. If you would like to buy a raffle ticket, please email the charity to info@aldlife.org. Or, alternatively visit their charity shop in Penge.
Address: 209 High Street, Penge, SE20 7PF.
Directions: www.aldlife.org/contact-us/charity-shops
ALD Life is a patient support group for patients and families affected with Adrenoleukodystrophy (ALD) – a rare genetic disorder that affects mainly young boys aged 4 to 10. At present, there isn't a cure for ALD with young boys becoming rendered into a semi-vegetative state within months, and death usually occurring shortly afterwards.
Adrenoleukodystrophy (ALD) is an inherited neurological disorder that affects young boys' ability to see, hear, speak and walk, and causes paralysis of certain limbs and seizures.
The charity was set-up by a local mother, Sara Hunt, when her son Alex was diagnosed with ALD in 2001. ALD Life provides emotional and financial support and practical information and advice to patients and families throughout the UK. The charity also helps to fund research projects looking into finding a cure for the disorder.
This Christmas, they've organised a raffle to raise funds to support young boys affected by this cruel and devastating disorder.
In August, they are holding a Get Together Family Weekend, which helps patients and families to come together and share their experiences with others. As a rare genetic disorder, patients and families are geographically-spread, and as such many never come in contact with others going through the same experiences.
Sara said: "All funds from our Christmas raffle will help ensure our Get Together Family Weekend can go ahead. We hope we can provide patients and their families with an opportunity to come together to share experiences and get away from the daily rigors of life with the disorder."
Prize Details:
1st Prize: an exciting holiday to Croatia for two, including flights, courtesy of Exodus Travels. For more information visit http://www.exodus.co.uk/holidays/add/overview"
2nd Prize: £100
3rd Prize: £50
Raffle tickets cost £1 each. If you would like to buy a raffle ticket, please email the charity to info@aldlife.org. Or, alternatively visit their charity shop in Penge.
Address: 209 High Street, Penge, SE20 7PF.
Directions: www.aldlife.org/contact-us/charity-shops
